Anyway, Tuesday was a particularly busy day.... but at least it came with answers! I had Timmy's friend, Jacob, for the day (I felt bad as we ran him around all day but tried to make up for it in the afternoon) not quite the day of play he bargained for, though. First Timmy had an appointment at McMaster Hopital, then we went to the Hamilton passport office since we were so close. The boys were so good, they played in the play room at McMaster and waited as patiently as two 6 year old boys can in the passport office... so we treated them to lunch at McDonald's ( I know yuck! But the kids love it!), after lunch we went to Toys R Us to get Timmy and Jacob a new Bakugan. Then we ran a few more errands. We made a stop on the way home to treat the kids to apple cider donuts at a little farmers market store. Yum!
But as I said, the day came with answers.... our little Timmy has been suffering with seizures for over two years now, and we finally received a diagnosis on Tuesday. He was such a trooper through all of the testing, some of it non invasive and some of it down right yucky, for a little guy, but he held strong. I am so proud of him. Timmy has what is called Reflex Anoxic Seizures, which are triggered through an unpleasant, painfully or scary stimuli or rapid temperature changes, especially in water. Which causes his heart and breathing to stop, resulting in a full blown spasming seizure. It only lasts about a minute from start to finish, but feels like an eternity. Then his brain needs a long nap in order to recover.The bad news is there is no cure, the good news is he stands a very strong chance of outgrowing this, and this knowledge is our light at the end of the tunnel. It allows us to be hopeful that he will have a normal future, if the seizures go away he will be able to drive and have his freedom, like his peers. Being a non-driver myself, this freedom is so important to me, for him.
However, I am truly thankful that he was not diagnosed with a life threatening illness or something that will drastically reduce his quality of life, so even if he doesn't recover he will still have a full life.
Also, with a diagnosis we can educate his school family about his needs should he have a seizure there. This also brings peace of mind.
Now we, his parents, will look for a way to balance keeping our little daredevil active, while keeping him safe. Might be easier to deal if he was a couch potato!